<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0" xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:googleplay="http://www.google.com/schemas/play-podcasts/1.0"><channel><title><![CDATA[Emma de Saram]]></title><description><![CDATA[Welcome to my publication]]></description><link>https://emdesaram.substack.com</link><image><url>https://substackcdn.com/image/fetch/$s_!fGfb!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Femdesaram.substack.com%2Fimg%2Fsubstack.png</url><title>Emma de Saram</title><link>https://emdesaram.substack.com</link></image><generator>Substack</generator><lastBuildDate>Sun, 10 May 2026 13:00:18 GMT</lastBuildDate><atom:link href="https://emdesaram.substack.com/feed" rel="self" type="application/rss+xml"/><copyright><![CDATA[Emma de Saram]]></copyright><language><![CDATA[en]]></language><webMaster><![CDATA[emdesaram@substack.com]]></webMaster><itunes:owner><itunes:email><![CDATA[emdesaram@substack.com]]></itunes:email><itunes:name><![CDATA[Emma de Saram]]></itunes:name></itunes:owner><itunes:author><![CDATA[Emma de Saram]]></itunes:author><googleplay:owner><![CDATA[emdesaram@substack.com]]></googleplay:owner><googleplay:email><![CDATA[emdesaram@substack.com]]></googleplay:email><googleplay:author><![CDATA[Emma de Saram]]></googleplay:author><itunes:block><![CDATA[Yes]]></itunes:block><item><title><![CDATA[CEO of my blood sugar with no days off. ]]></title><description><![CDATA[it's bloody exhausting.]]></description><link>https://emdesaram.substack.com/p/ceo-of-my-blood-sugar-with-no-days</link><guid isPermaLink="false">https://emdesaram.substack.com/p/ceo-of-my-blood-sugar-with-no-days</guid><dc:creator><![CDATA[Emma de Saram]]></dc:creator><pubDate>Fri, 06 Feb 2026 16:00:42 GMT</pubDate><content:encoded><![CDATA[<p>I was just reading about disability theory, I have ADHD, concentrating is hard enough. My phone goes, it&#8217;s the surgery with my blood test results, my HBA1C is a bit off. The GP is lovely, kind and understanding when I tell her why my blood sugar control hasn&#8217;t been great recently: stress, struggling with food, exhaustion, forgetting to actually order my prescription, leading me to restrict how many testing strips I am using a day.</p><p>I also confess to her that I haven&#8217;t actually changed the lancets in my finger prick device for about 7 months; I can hear her wince through the phone, forcing a laugh, I tell her, &#8216;I know, it&#8217;s really bad&#8217;. I hear her hesitation as she asks me if I am re-using insulin needles too, &#8216;I know, it&#8217;s really bad&#8217;, the environmentalist in me hates a single use plastic needle, but I guess when the side effect is a blood infection it&#8217;s probably okay to leave some principles at the door.</p><div class="subscription-widget-wrap-editor" data-attrs="{&quot;url&quot;:&quot;https://emdesaram.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe&quot;,&quot;language&quot;:&quot;en&quot;}" data-component-name="SubscribeWidgetToDOM"><div class="subscription-widget show-subscribe"><div class="preamble"><p class="cta-caption">Thanks for reading! Subscribe for free to receive new posts and support my work.</p></div><form class="subscription-widget-subscribe"><input type="email" class="email-input" name="email" placeholder="Type your email&#8230;" tabindex="-1"><input type="submit" class="button primary" value="Subscribe"><div class="fake-input-wrapper"><div class="fake-input"></div><div class="fake-button"></div></div></form></div></div><p>Having a chronic disease like Type 1 Diabetes is a full time job. It is exhausting, and taking breaks from 24/7 control only makes things get worse. The long term consequences include, but are not limited to, retinal neuropathy, feeling shit, snapping, and having bad test scores in my annual diabetes review.</p><p>The hardest part isn&#8217;t medical though, it&#8217;s the exhaustion of living with a hidden disability, passing as able-bodied, and having to explain, advocate and fight for myself all the time. It&#8217;s living in a relentless unforgiving world, that doesn&#8217;t see the in- betweens. </p><p>More recently, I&#8217;ve realised how much I fall between the cracks of the Cartesian Dualism that plagues the healthcare system. Over the last few months, my eating disorder has become louder and more present, which quite obviously spills over into managing Type 1 diabetes (using the commanding verb &#8216;manage&#8217; here, because its omnipresent in all the medical discourse around &#8216;managing your blood sugar&#8217;. I should be demanding a salary raise if I&#8217;m expected to be the <em>CEO of my glucose levels</em>). </p><p>But, as I have learned, our post-war biomedical model of healthcare only allows <strong>one</strong> issue to be considered in isolation. So when I tell my Diabetes Nurse that I am relapsing with anorexia, I am referred to the Eating Disorder team, a completely different part of the NHS. But when I attend my ED appointment, and start talking about my blood sugar, a look of shock passes the innocent psychologists&#8217; face, because she has no idea what to say, and professionally has no understanding of what I am talking about. So, I am added to a waiting list to see a &#8216;Diabetes Psychologist&#8217;. </p><p>A rather threatening letter arrives a week later by said psychologist, who offers me an appointment on a day I can&#8217;t make, and due to the long waiting list, I am informed that if I cannot make the offered appointment, I will be removed from the waiting list, and to get back in touch if I need help. </p><p>Because, obviously, disabled people can&#8217;t have any plans and must orientate their lives around the <a href="https://www.theguardian.com/commentisfree/article/2024/may/08/nhs-underfunding-broken-equipment">chronically underfunded NHS</a>. Great. Lovely. Back to square one.</p><p>Type 1 diabetes is blooody exhausting. And I say that while acknowledging the access to medical care, prescriptions and technology that means I can survive (the global inequities embedded in access to diabetes tech is something I wrote about <a href="https://shado-mag.com/articles/opinion/zoe-zoe-everywhere/">here</a>). </p><p>Had I been born a century ago, T1 diabetes would have been a death sentence. Both a motivating and slightly morbid everyday fact of my existence. It doesn&#8217;t make it less tiring though. I say diabetes is hidden, but for me, it is slowly creeping up on me and becoming more visible; in my absence from social occasions, protests, the bags under my eyes from sleepless nights with my CGM going off, and more and more unanswered messages. </p><p>Anyway, that is my little window into navigating the job of full-time pancreas; a window I will gently close for now. </p><p>Thank you for reading,</p><p>Emma x </p><p>Read more about t1 diabetes here: https://breakthrought1d.org.uk/wp-content/uploads/2025/11/Breakthrough-T1D-Helping-others-to-understand-type-1-diabetes-leaflet.pdf </p><div class="subscription-widget-wrap-editor" data-attrs="{&quot;url&quot;:&quot;https://emdesaram.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe&quot;,&quot;language&quot;:&quot;en&quot;}" data-component-name="SubscribeWidgetToDOM"><div class="subscription-widget show-subscribe"><div class="preamble"><p class="cta-caption">Thanks for reading! Subscribe for free to receive new posts and support my work.</p></div><form class="subscription-widget-subscribe"><input type="email" class="email-input" name="email" placeholder="Type your email&#8230;" tabindex="-1"><input type="submit" class="button primary" value="Subscribe"><div class="fake-input-wrapper"><div class="fake-input"></div><div class="fake-button"></div></div></form></div></div>]]></content:encoded></item><item><title><![CDATA[Exploring neurodiversity & climate action through co-production]]></title><description><![CDATA[how we prevent activist burnout on a planet on fire]]></description><link>https://emdesaram.substack.com/p/exploring-neurodiversity-and-climate</link><guid isPermaLink="false">https://emdesaram.substack.com/p/exploring-neurodiversity-and-climate</guid><dc:creator><![CDATA[Emma de Saram]]></dc:creator><pubDate>Tue, 28 May 2024 08:36:57 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!cdME!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p><strong>Over the past few months, I have been contributing to an online co-production group facilitated by <a href="http://www.niftysustainability.org.uk/">Nifty Sustainability</a>, where we are exploring the intersections of neurodiversity and the climate crisis, hoping to help others in their climate activism journeys.</strong></p><p>By exploring topics like eco-hope and eco-anxiety, we are collectively working to create resources to share with organisations and individuals taking on one of the biggest challenges we face. Sharing our stories of how our neurodivergence shows up in our activism and working towards building sustainable systems has been personally a very affirming experience. </p><p>There is a quote by Mary Heglar that goes,</p><blockquote><p><em>The thing about climate is that you can either be overwhelmed by the complexity of the problem or fall in love with the creativity of the solutions</em>.</p></blockquote><p>The climate crisis is not a single issue; it transcends, impacts, and wreaks havoc across every aspect of our life support systems. Attempting to confine the climate crisis to a neat &#8216;environmental&#8217; box is predominantly used by corporations to drive the crisis and delay action to distract from the systemic drivers. Decades of strategic greenwashing by those benefiting from destructive industries have effectively framed the climate crisis as a &#8216;green&#8217; issue, rather than a political, economic, and relational one.</p><p>The enormity of the climate crisis can be overwhelming, but I find hope in the small projects and campaigns I can work on, always keeping the global picture in mind. However, feeling that this is ever &#8216;enough,&#8217; especially as someone who is neurodivergent, has led to multiple instances of burnout from overworking and spinning too many plates at once.</p><p><strong>Co-production</strong></p><p>So, when I received an email about the opportunity to contribute to a co-production group exploring how neurodiversity and climate action intersect, I was excited to join a collaborative group not just exploring the issues, but working collectively on solutions and building educational awareness. </p><p>The benefits of co-production include allowing a group of people with similar lived experiences to contribute to a shared resource or outcome. Through our Zoom calls, we have contributed to online murals focused on topics like the barriers we face working in sustainability and climate actions, what &#8216;eco-hope&#8217; means to us, and our experiences of eco-anxiety.</p><p>While joining a call with a whole group of new faces was initially daunting, I quickly realized that I am not alone in being drawn into overworking and running out of steam due to my neurodiversity and strong commitment to advocating for climate justice.</p><p>We have explored both the physical barriers of being neurodiverse and a climate activist&#8212;sometimes having to choose less sustainable forms of transport or food options&#8212;and the mental barriers, like taking on too much work and having limited energy. Collecting and sharing these experiences has highlighted the significant crossover between climate justice and neurodiversity. Aside from just being called 'Greta,&#8217; being neurodiverse and an activist has allowed me to never waver from my morals and ethics, and contribute significantly to the movement. However, it has also increased my internal pressure to be constantly working. A holistic understanding of climate change means we can never escape it; every day, we are surrounded by things that materially impact the climate, which is difficult for anyone aware of the climate crisis, let alone individuals navigating the world through the lens of neurodiversity.</p><p>How we approach the climate crisis and neurodivergence should strongly intersect with looking at the systems and structures we work and live within. To tackle the climate crisis, we must address the root causes, and to accommodate neurodivergence, we must look at how inaccessible the world is, and interrogate ableism and the ways that disability is viewed as undesirable. </p><p>At the end of our last workshop, we explored what moves us from eco-anxiety to eco-hope; we shared that being outside with nature, connecting with others and moving away from individualism towards community action is vital to sustaining ourselves to sustain our planet. For me, eco-hope is an active stance towards stewardship of all living beings, with an understanding that we can make a difference and that every fraction of a degree matters.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="https://substackcdn.com/image/fetch/$s_!cdME!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="https://substackcdn.com/image/fetch/$s_!cdME!,w_424,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 424w, https://substackcdn.com/image/fetch/$s_!cdME!,w_848,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 848w, https://substackcdn.com/image/fetch/$s_!cdME!,w_1272,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 1272w, https://substackcdn.com/image/fetch/$s_!cdME!,w_1456,c_limit,f_webp,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 1456w" sizes="100vw"><img src="https://substackcdn.com/image/fetch/$s_!cdME!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp" width="268" height="268" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:400,&quot;width&quot;:400,&quot;resizeWidth&quot;:268,&quot;bytes&quot;:18676,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/webp&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:true,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:null,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="https://substackcdn.com/image/fetch/$s_!cdME!,w_424,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 424w, https://substackcdn.com/image/fetch/$s_!cdME!,w_848,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 848w, https://substackcdn.com/image/fetch/$s_!cdME!,w_1272,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 1272w, https://substackcdn.com/image/fetch/$s_!cdME!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F85ed80ab-f990-4446-a905-44d3522bd5a8_400x400.webp 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg role="img" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><title></title><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>I hope through our following workshops, we can curate a resource that can inform both climate activists and organisations on how to support neurodiverse workers and build more accommodating environments to avoid us entering cycles of burnout. </p><p></p><p></p>]]></content:encoded></item><item><title><![CDATA[Coming soon]]></title><description><![CDATA[This is Emma de Saram.]]></description><link>https://emdesaram.substack.com/p/coming-soon</link><guid isPermaLink="false">https://emdesaram.substack.com/p/coming-soon</guid><dc:creator><![CDATA[Emma de Saram]]></dc:creator><pubDate>Sat, 04 Mar 2023 09:44:19 GMT</pubDate><content:encoded><![CDATA[<p>This is Emma de Saram.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://emdesaram.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://emdesaram.substack.com/subscribe?"><span>Subscribe now</span></a></p>]]></content:encoded></item></channel></rss>